EDSandCoSociety

Many of us with EDS and related conditions have gone years without diagnosis, and with doctors simply telling us that our symptoms are "in our head." The lack of awareness, and need for patients to diagnose themselves to get help has motivated us to create a non-profit with a focus on educating the public, patients, and medical providers about Ehlers Danlos and related conditions. We are hoping to give back to society in a way different than other societies, by helping at a grass-roots level to support patients.